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The different main topics will be introduced by a person with OI.

Thursday September 23rd 2010 – 10.00 am – 06.00 pm

 
Welcome by Ingunn Westerheim -
The Norwegian Osteogenesis Imperfecta Association
 
Osteogenesis Imperfecta – in a wider perspective by Lena Lande Wekre

  • Evaluation
  • Diagnostics
  • Classification
  • Treatment and follow-up

Genetics by Francis Glorieux

  • Genetics – fundamental changes in OI. Possible tests. What tests should be used and when?

  • Typing / Different types of OI 

Bisphosphonate treatment

  • Bisphosphonate treatment in children and adolescents with OI – effect, indications, choice of type and follow-up by Francis Glorieux

  • Bisphosphonate treatment in adults with OI – effect, indications, choice of type and follow-up by Erik Fink Eriksen

 
Follow-up in adults with OI

  • Special aspects in follow-up and (re)habilitation of adults with OI by Lena Lande Wekre

  • Changes in the cardiovascular system by Zoran Radunovic

 

Friday September 24th 2010, 08.30 am – 04.00 pm

Ortopedics

  • Orthopedic follow-up of children and adolescents with OI – what should be monitored? Frequency of check-ups?

    • The orthopedic complications of OI in upper and lower extremities by François Fassier

    • The orthopedic complications of OI in the spine by Hans Pruijs

  • Rodding in children with OI – indications, methods and follow-up. Special focus on Fassier-Duval by François Fassier

  • Treatment with bisphosphonates and orthopedic surgery by Hans Pruijs

 
Habilitation / Rehabilitation

  • Habilitation/rehabilitation of children and adolescents with OI by Kathleen Montpetit and Stephanie Gould

  • Multidisciplinary collaboration in the follow-up of children and adolescents with OI by Francis Glorieux, François Fassier, Kathleen Montpetit and Stephanie Gould

Summary and closing remarks

  • How should we think about these topics in Norway / the Nordic countries? by Lena Lande. Wekre